The annual meeting of the ENDO-ERN network - part of the European Reference Network - took place in Milan - with over 100 participants from all over Europe.

The annual meeting of the ENDO-ERN network - part of the European Reference Network - took place in Milan - with over 100 participants from all over Europe.

A panel discussion on the opportunities of artificial intelligence for rare diseases took place at the Meratnix AI Campus in Berlin.

As part of an event organized by MITeinander und Unabhängig eV, the Alström Initiative, Ben's Art and Alström Syndrom eV were presented and pictures from Ben's Art were auctioned.

Another great contribution from Elke and Rolf from FAIR HOMES Immobilien - this time even two donations from successful real estate brokerages. Great business model!

An international discussion round at the World Orphan Drug Congress in Barcelona marked the start of a concerted project to find solutions for rare diseases.

A three-day conference of Alström Syndrome International in Baltimore with 150 participants from all over the world. Pictured is Robin Marschall, one of the most deserving "fighters" for improvements.

A three-day conference of Alström Syndrome International in Baltimore with 150 participants from all over the world. Pictured is Robin Marschall, one of the most deserving "fighters" for improvements.

Absolute milestone! The first members' meeting of the recently founded Alström Syndrom eV in the "middle" of Germany - in Neudietendorf.

The 7th Rare Disease Symposium of the Eva Luise and Horst Köhler Foundation on June 9 and 10, 2023 also offered the Alström Initiative the opportunity to contribute its perspective.

This year, five experts met again in Berlin for a virtual discussion under the main theme of innovation. Topics included pilot programs and the use of data.

In 2023 the theme of the festival was 'Awareness'.

To show that - no matter what starting conditions someone has - we are all normal people with goals, dreams and abilities.

The Rare Disease Run - for the first time we were allowed to take part as the Alström Initiative - was a complete success. Over 3,000 participants and over 30,000 euros in donations for 20 clubs!

Putting the patient at the centre of things. It's easy to write that down or formulate it as a requirement. But implementing it consistently requires more than just declarations of intent. We were able to discuss this with Pfizer CEO Albert Bourla, among others.

The annual meeting of the ENDO-ERN network - part of the European Reference Network - took place in Milan - with over 100 participants from all over Europe.

The annual meeting of the ENDO-ERN network - part of the European Reference Network - took place in Milan - with over 100 participants from all over Europe.

For the second time, I was able to actively participate in the LOUDRARE Festival - this time a total of 7,000 participants took part in this extraordinary event over two days.

ASUK offers a unique platform to unite the entire Alström world as part of its Global Conference. In this context, I was able to introduce Alström Syndrome eV.

Online discussion on the importance of data in healthcare and the challenges that still need to be solved.

A lecture as part of the "Global Media Marketing" course at WU Vienna about the similarities in creating relevance in the commercial and non-profit sectors.

Pfizer CEO Albert Bourla provided insights into Pfizer’s strategy, current challenges and offered the opportunity for discussion.

The Pfizer Patient Dialogue - an event that brings together patient organizations, medicine, associations and industry - took place in Berlin for the 27th time.

There were two exciting challenges at the Transfusion Hackathon 2023, including the question of how patients can get a diagnosis faster.

An exciting day of filming for a still 'secret' project in Berlin. We are very excited about the results and the reactions to them. Just a little more patience...!

Generous support of the Alström Initiative by Dr. Rolf Gengenbach and Elke Schlichtig from FAIR-HOMES IMMOBILIEN.

Thank you!

A real highlight of our work so far! The 'Limited Edition' campaign to support our petition.

Developed - pro bono - by the Munich agency Hirschfänger.

Advertised in renowned media - also pro bono!

On February 1, the Alström Initiative, together with the newly founded association Alström Syndrom eV, was able to organize the first event as part of the campaign of the Bundestag member Erich Irlstorfer.